Haemophilia

Haemophilia is a type of bleeding disorder in which the blood does not clot properly. Appropriate management aims to help people with haemophilia to live full, healthy and active lives, with the same opportunities as anyone else.

Together with Sanofi, we provide extended half-life recombinant replacement clotting factor treatments for haemophilia A and haemophilia B. Our ambition in haemophilia is to enable access to our treatments for everyone in our territory – Europe, most countries in the Middle East, North Africa and Russia – who has a need. Through our partnership with Sanofi and the wider haemophilia community, we are actively seeking to find solutions for the challenges facing all people with haemophilia. 

Liberate Life

In the summer of 2018, we undertook a large-scale, pan-European ethnographic study of the lives of 51 people living with haemophilia. These people, as well as their families, were monitored by researchers for 1-2 days, while 18 healthcare providers and five haemophilia experts were interviewed for further understanding. This in-depth research provided the main insights that inspired our vision for haemophilia: Liberate Life.

For decades haemophilia treatment has been focused on ensuring survival and stability – working towards moving patients out of the untreated “danger zone” and with the primary aim of their treatment to allow them to live a stable life.

We have come a long way since then, and with current treatment options, we can turn our attention to achieving what is now possible: treating people with haemophilia so they can live their lives to the fullest. This means that rather than just keeping them safe, we start taking their dreams and ambitions seriously and turn them into reality.

Liberate Life is Sobi’s way of supporting and empowering people living with haemophilia. It represents our commitment to challenging the status quo of conventional treatment methods, and to creating better possibilities through better care. Liberate Life is based on the fundamental criteria that treatment should always allow people living with haemophilia to feel safe, be protected from bleeds, have long-term joint health protection and feel unburdened by haemophilia. It is through this vision that this special group of people can liberate life by enjoying a life beyond haemophilia.

Find out more at LiberateLife.eu.